I met Melanie a few months ago and that’s when I first heard of Williams Syndrome. Huh? That was my reaction too till I learnt Williams Syndrome is a rare genetic condition that can affect anyone. It is present in 1 in 18,000 births, and is characterized by a host of medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with highly social personalities and an affinity for music.
But I’m getting ahead of myself. A few months ago I was at Blissdom, the largest blogger conference in Canada and that’s where I met Melanie – mom of two, blogger at Mommydo and creative guru. Melanie’s daughter Alma has Williams Syndrome.
Over the next couple of days during the conference, Melanie and I connected over life, the world we live in, and how we want to change it. She and I talked about how she wants to raise awareness of this relatively unknown genetic condition and how she’s motivated to tirelessly advocate for her daughter’s future.
In support of Melanie and her mission, I am volunteering to help the #WSHappyWalk. And you can help too by participating in the Happiest Walk in Canada. But first there is the Happiest Party, and you’re invited!
Join us on May 31 at 9 pm EST to help raise awareness for Williams Syndrome (don’t worry, you’ll learn all about it on Tuesday).
RSVP with your Twitter handle and your email address, and follow @mommydoCA, @TheInspiredHome, @Merry120, @JennPowellLive to enter to win prizes worth $600. To help spread the word you can also follow @SherrieMae23, @JennAnnis, @LittleMissKateCo, @MultitestingMom and @Maple_Marigold
Melanie has a vision of the world she wants for her kids. I want my kids to live in that same world, and trust me you do too!
For the rest of the details for Walk for the CAWS see here:
What is the #WSHappyWalk?
Thank you so much for sharing Alma and Williams Syndrome with us!
I shared on Twitter (https://twitter.com/zoojourneys/status/737639518812135424).
Besos, Sarah
Journeys of The Zoo
It’s a cause we can all get behind, Sarah! Hope to see you at the twitter party tonight at 9 pm.
https://waterfallmagazine.com
An interesting discussion is definitely worth comment.
There’s no doubt that that you need to write more on this topic, it may not be a taboo subject but usually
people do not talk about these topics. To the next! Kind regards!!